BIG NEWS ....
Hey everyone! It's been a while since I last wrote.... but I have some big news!!!!!! Yesterday (Tuesday December 22nd) I got my gastro-jejunal (GJ) feeding tube taken out ... FOR GOOD ... and I couldn't be happier. If you didn't already know, I had a feeding tube in my stomach that used to be my main source of nutrition and hydration when I was sick. Because I wasn't able to eat normally due to my SMAS and MALS, my feeding tube became somewhat of a life line for me. It kept me from having fainting episodes and being malnourished. And while at times it caused severe pain and discomfort, I am so grateful that I had it. It kept me alive when my body wasn't working right. It kept me alive when I was misdiagnosed and none of my doctor's recommendations were working. It kept me alive when things went terribly wrong in my body, requiring an emergent open abdominal surgery. It gave me strength to keep fighting, even when I was so weak that even thinking about getting